May 18, 2010

Special Message

I am helping a friend, Deanna, spread the news about a serious and often undiagnosed condition known as Fibromyalgia. Seems like to me the further medicine and treatments advance the more chronic illness’ plague us, don’t you think? Sadly some doctors still think it’s all in our heads. ARGH! When is some really techno geeky genius gonna invent a machine that actually and accurately measures pain? I believe it’s true that some people can tolerate more pain or certain kinds of pain better than others. For instance the age old idea that if men had to squeeze a baby out their wee lil’ man the pro-creation process would come to a screeching halt. Why can a paper cut hurt so badly it brings tears to one’s eyes yet broken ribs are merely uncomfortable? It’s maddening I tell you! I know some of you, my dear, dearest internets suffer from fibromyalgia both diagnosed and undiagnosed.

So many of us on the www have illness and what nots that makes socializing in RL a bit harder than for the average un-pained people out there. The internet has opened a vast data base of information in terms of education, discovery and community. Please check out the web site I have linked to in this post. Don’t be one of the many that continues to suffer with pain without a “cause”

Please be sure to pop over to Deanna's Blog, she has a few post about it and will tell you way more better than I about this issue.


J. M. Strother said...

Deanna's is a compelling story and I commend her (and you) for working to get the word out. Fingers crossed for great advances in the future.

Georganna Hancock M.S. said...

Nice of you to do a public service like posting this information. Yes, I know all about Fibro--my pediatrician told my mother that my "nerves were too close to the surface" and that was why I cried all the time.

Sadly, Fibro is the wastebasket they throw all of us in after they've ruled out anything they can test for. Then they give us pain killers (more problems) and/or antidepressants. Who wouldn't be depressed, aching all the time?

I'd settle for a cure, or at least pain reduction without bad side effects (LIKE ADDICTION!) rather than a cause.

Can you tell I'm having a bad spel?

Jai Joshi said...

Thanks for this support of our friend Deanna. I've learned so much about the condition since meeting her. She's so strong.


sheila said...

Yes, I've heard this is terrible. I certainly hope the best for all who are afflicted. I'll go read her post now. :o)

Ronda Laveen said...

Paige: Very nice work in getting the word out about both Fibrmyalgia and Deanna. Thanks for visiting my blog and I also enjoyed your 365 site. Wonderful unedited photos!

Jannie Funster said...

It's really really awesome you're highlighting this painful condition, Paige. I now know 4 bloggers who suffer from Fibromyalgia.

I currently have a song video up on my sidebar about ME/CFS, which I plan to feature in an upcoming post. It is so debilitating and painful. I wish all the sufferers could all get the attention they deserve.

I'm off to Diana's now. See you later!!


Snaggle Tooth said...

Good post!
My older sis who has MS has also been diagnosed with FibroMyalgia. I just avoid all doctors lately cause I have no insurance. I do put up with tons of pain- but believe work n allergies caused most of it. Thanks for good info

Deanna Schrayer said...

Oh Paige, I am SO ashamed! I was so wrapped up in doing that series that I haven't even visited blogs since first writing it, (ironically, working so hard on that series threw me into a four day flare and I'm just now starting to feel back to "normal" again).
Anyway, THANK YOU SO MUCH for your help in spreading the word, and you even took a picture of my site - how cool is that! You are so sweet to have helped me get the word out, and I appreciate you very much.

Geo, I'm not sure if you read my series or not, but after reading your comment I've just got to tell you - get out there and seek answers. One very important thing to remember about being addicted to pain killers is that if you're worried about being addicted, you most likely won't be. There is a BIG difference in addiction and dependency, which I address in the treatment post of this series. Don't go on in pain, demand attention.

Thank you again Paige, and thanks to all of you for following the series and visiting my blog!

Paige, I still need to post a formal thank you for the award, which I plan to do on Tuesday, to celebrate with the Cookie Monster's birthday. By the way, I found out yesterday that the Cookie Monster's birthday is actually in November, NOT next week! But we're gonna party anyway, and I promise a link to those ginger snaps for you.

Again, I'm sorry I'm late, and THANK YOU VERY MUCH for your help!